ESC Patient Engagement
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ESC Patient Engagement

Focusing on what matters to patients

To achieve its mission of reducing the burden of cardiovascular disease, the ESC established the ESC Patient Forum to ensure that the patients' voice can be reflected in ESC activities. 

ESC Congress 2024

The ESC sees patient engagement as a partnership between patients and healthcare professionals that actively supports our mission of reducing the burden of cardiovascular disease. Our aim is to listen and learn from patients on how to:

  • find better ways of implementing evidence
  • support patient self-management
  • improve patient outcomes
  • reduce health inequities

Established in 2018, the ESC Patient Forum, currently led by Prof. Lis Neubeck, brings together patients, with personal experience of cardiovascular conditions, from countries around Europe. The Patient Forum provides a platform for people living with cardiovascular conditions, as well as their caregivers, to engage, share experiences, and receive information and support. The forum aims to help raise awareness of cardiovascular diseases, enhance the knowledge of patients about their conditions, and promote better communication between patients and healthcare professionals.

Our vision

Patient Forum - Our Vision.jpg 

The vision is to have professionals and patients working together to make a meaningful contribution to all objectives of the ESC, from congresses and educational resources to ESC Guidelines and advocacy. We want to develop and enhance patient engagement so that it is embedded like a golden thread through all ESC activities. 

More about the Patient Forum

Read what the Patient Forum does.

Read how you can apply and become part of our patient's community.

To join the Patient Forum or for any questions related to ESC Patient Engagement, please contact us.

Patient material and support

Heart Failure Patient Website

The heartfailurematters.org website highlights how, with simple changes in lifestyle, a better understanding of heart failure and appropriate treatment, many people live full and active lives. It is time for us to help them take charge of their health. Visit heartfailurematters.org

 

Atrial Fibrillation Patient Website 

An educational website designed by health professionals and patients for people suffering from atrial fibrillation. It is also a valuable resource for families and caregivers. Visit afibmatters.org

 

Cardiac Device Patient website 

Get access to the information you need to make informed decisions when discussing the implant of a cardiac device with your physician, caregivers and family. Visit myrhythymdevice.org

 

Preventive Cardiology Patient Website 

Cardiovascular disease is a common condition, accounting for four million deaths per year in Europe. Find reliable information and practical advice to prevent cardiovascular disease, manage your health more effectively and live longer, more active lives. Visit healthy-heart.org

 

EACVI Patient Information

Imaging procedures can be confusing and intimidating for patients. To help navigating them, the EACVI has developed webpages with leaflets and videos that provide clear explanations about what you can expect and how to prepare. Visit escardio.org

 

Patient versions of ESC Guidelines

According to the ESC Clinical Practice Guidelines, these documents outline diagnosis and treatment recommendations derived from medical and scientific evidence provided by healthcare professionals. They aim to help you better understand your condition, empowering you with the knowledge and confidence to engage in shared decision-making with your healthcare providers. Additionally, they offer advice on self-care strategies, which are crucial for effectively managing your condition. Visit escardio.org