Heart Failure Registry

A 'General' registry

Topic(s):

Heart Failure

Heart Failure registry publications

Date

Title

Date: 24/01/2024

Title: Left ventricular ejection fraction digit bias and reclassification of heart failure with mildly reduced vs reduced ejection fraction based on the 2021 definition and classification of heart failure
Date: 06/06/2023

Title: Prevalence, clinical characteristics and outcomes of heart failure patients with or without isolated or combined mitral and tricuspid regurgitation: An analysis from the ESC-HFA Heart Failure Long-Term Registry
Date: 21/05/2023

Title: Prevalence, characteristics and prognostic impact of aortic valve disease in patients with heart failure and reduced, mildly reduced, and preserved ejection fraction: An analysis of the ESC Heart Failure Long-Term Registry
Date: 23/04/2023

Title: Hyponatraemia and changes in natraemiaduring hospitalization for acute heart failureand associations with in-hospital and long-termoutcomes – from the ESC-HFA EORP HeartFailure Long-Term Registry
Date: 19/04/2023

Title: What determines who gets cardiac resynchronization therapy in Europe? A comparison between ESC-HF-LT registry, SwedeHF registry, and ESC-CRT Survey II
Date: 01/05/2020

Title: Prevalence of risk of thrombosis and of bleeding and antithrombotic treatment in patients with heart failure
Date: 03/04/2020

Title: Unravelling the interplay between hyperkalaemia, renin-angiotensin-aldosterone inhibitor use and clinical outcomes. Data from 9 222 chronic heart failure patients of the ESC HFA EORP Heart Failure Long-Term HF LT Registry
Date: 01/04/2020

Title: Association between loop diuretic dose changes and outcomes in chronic heart failure: observations from the ESC-HFA EORP HF Long-Term Registry
Date: 18/07/2019

Title: Hyperkalemia in heart failure patients in Spain and its impact on guidelines and recommendations
Date: 24/05/2019

Title: Acute heart failure congestion and perfusion status – impact of the clinical classification on in‐hospital and long‐term outcomes
Date: 08/10/2017

Title: Long‐term safety of intravenous cardiovascular agents in acute heart failure
Date: 26/09/2017

Title: Characteristics, treatments and 1‐year prognosis of hospitalized and ambulatory heart failure patients with chronic obstructive pulmonary disease
Date: 08/05/2017

Title: Association between diabetes and 1-Year adverse clinical outcomes in a multinational cohort of ambulatory patients with chronic heart failure
Date: 30/04/2017

Title: Clinical phenotypes and outcome of patients hospitalized for acute heart failure
Date: 28/10/2016

Title: In‐hospital and 1‐year mortality associated with diabetes in patients with acute heart failure
Date: 15/08/2016

Title: Diagnosis, clinical course, and 1-year outcome in patients hospitalized for heart failure with preserved ejection fraction
Date: 20/06/2016

Title: Heart Failure Long‐Term Registry: 1‐year follow‐up outcomes and differences across regions
Date: 15/05/2016

Title: Body surface area as a prognostic marker in chronic heart failure patients
Date: 08/07/2015

Title: Clinical characteristics and management of hospitalized and ambulatory patients with heart failure
Date: 08/03/2015

Title: Adherence to the ESC Heart Failure Treatment Guidelines in Spain

Objectives and characteristics of the study

The primary objective of the Heart Failure Registry is to describe the clinical epidemiology of outpatients and inpatients with Heart Failure and the diagnostic/therapeutic processes (including the organization of Heart Failure management programmes) applied to these patients across Europe and Mediterranean countries.

Objectives

To describe the demographic, clinical, and biological characteristics of outpatients and inpatients with Heart Failure (HF) followed by a representative setting of cardiology centres.

Specific attention will be focused on:

Describe the diagnostic and therapeutic approaches undertaken in the routine practice of cardiologists in following outpatients with chronic HF or during the hospital phase for acute HF.Assess the in-hospital and out-of-hospital outcomes of patients with HF and to validate the prognostic predictors of these outcomes.
- on patients with preserved Ejection Fraction, whose heterogeneity in trials and in observational studies needs to be better understood.
- on clinically relevant co-morbidities, such as COPD and diabetes mellitus, which frequently are associated with HF and impact patient outcomes.
Evaluate the organization of HF management across countries.
Evaluate how recommendations of most recent European guidelines regarding pharmacological and non-pharmacological treatments are adopted in clinical practice and how their application can impact on patients' outcomes.
Evaluate the prevalence of the clinical profiles of patients with acute HF, according to the definitions proposed by the European Society of Cardiology, and to investigate their appropriateness in characterizing patients with different clinical presentations and needs.

Characteristics

More than 30 countries are taking part in this registry, which was launched in May 2011.

The aim of enrolling approximately 10,000 patients during the first year has been achieved.

Prior to the deployment of the long-term registry a pilot registry was conducted, between October 2009 and May 2010, with a one-year follow-up. This pilot study was specifically aimed at validating the structure, performance, and quality of the data set, for continuing the survey into a permanent registry.
12 countries enrolled 5118 patients in this pilot, of which the first results were presented at the ESC Congress 2010.

If you are already registered as a participant in the EORP programme, you may connect to our secure website: http://www.eorp.org

Study Organisation

Maria Leiro Crespo
Marisa Crespo-Leiro

Executive Committee

Executive Committee, Phase II (since 2013)

Marisa Crespo Leiro (Chair)
Alexandre Mebazaa
Massimo Piepoli
Stefan Anker
Gerasimos Filippatos
Aldo Maggioni

Executive Committee, Phase 1 (2011-2013)

Aldo Maggioni (Chairman)
Stefan Anker
Ulf Dahlström
Gerasimos Filippatos
Luigi Tavazzi
Piotr Ponikowzki
Faiez Zannad

Steering Committee

The Steering Committee is composed of one National Coordinator per participating country. The National Societies are responsible for the selection of the national coordinators and participating centres.

Steering Committee members

Friedrich Fruhwald (AT)
Emir Fazlibegovic (BA)
Plamen Gatzov (BG)
Davor Milicic (HR)
Theodoros Christodoulides (CY)
Jaromir Hradec (CZ)
Tiina Uuetoa (EE)
Mahmoud Hassanein (EG)
Damien Logeart, Richard Isnard (FR)
Vakhtang Chumburidze (GE)
Dimitris Tousoulis (GR)
Béla Merkely (HU)
Offer Amir (IL)
Marco Metra (IT)
Andrejs Erglis (LV)
Ausra Kavoliuniene (LT)
Elizabeta Srbinovska, Magdalena Otljanska (MK)
Eleonora Vataman (MD)
Jaroslaw Drozdz (PL)
Candida Fonseca (PT)
Ovidiu Chioncel (RO)
Evgeny Shkolnik (RU)
Milica Dekleva (RS)
Eva Goncalvesova (SK)
Mitja Lainscak (SI)
Juan Delgado Jimenez (SP)
Ulf Dahlström (SE)
Ahmet Temizhan (TR)

Heart Failure Pilot Committees

Executive Committee

Aldo Maggioni (Chairman)
Ulf Dahlström
Gerasimos Filippatos
Luigi Tavazzi
Faiez Zannad

Steering Committee

Friedrich Fruhwald (AT)
Mathias Rauchhaus (DE)
Olav Wendelboe Nielsen (DK)
Marisa Crespo-Leiro (ES)
Damien Logeart (FR)
John T. Parissis (GR)
Marco Metra (IT)
Adrian A. Voors (NL)
Lars Gullestad (NO)
Jaroslaw Drozdz (PL)
Ovidiu Chioncel (RO)
Hans Persson (SE)

View all ongoing ESC Registries

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Heart Failure Registry

A 'General' registry

Objectives and characteristics of the study

Objectives

Characteristics

Study Organisation

Executive Committee

Executive Committee, Phase II (since 2013)

Executive Committee, Phase 1 (2011-2013)

Steering Committee

Heart Failure Pilot Committees

Executive Committee

Steering Committee